WHO WE ARE!
Hello! We are Laura and Terry! We are spreading awareness for Atypical Parkinsonism (PSP/CBD/MSA) around the Globe! We have a close connection to Atypical Parkinsonism and the struggles that come with a diagnosis. Progressive Supranuclear Palsy (PSP) touched our family (Laura’s Mom) and bringing awareness for this disease and other Atypical Parkinsonism Diseases is our goal and mission!
We understand the challenging situations that many families face who have been touched by a rare disease. Our biggest struggle was to find health professionals and individuals who knew about the disease or support within the community. Our hope is to spread awareness across the globe, to try and connect and educate as many individuals as we can. No one should feel alone!
The Awareness Shop is just one of our ways to try and reach across the globe and bring awareness for Atypical Parkinsonism. We donate 5% from all sales to Charity and Research!
Another way we have been raising awareness is,
Laura started PSP Awareness In May 2019 to help support & spread Awareness throughout the communities and in the medical field for Progressive Supranuclear Palsy (PSP) and Parkinsonism. Laura’s Mom (Coleen) was officially diagnosed in late 2018 with PSP after being misdiagnosed for a couple years. We tracked symptoms as far back as 2015 in retrospect. She rapidly progressed after official diagnosis and unexpectedly but peacefully passed away in her sleep beside Laura on May 18, 2019.
We struggled to find resources and supports for this rare neurological disorder and not many doctors or specialist had even heard of it (1 out of 10). It was very frustrating and discouraging for all of us. Laura decided to make it her mission to find and provide the best care and resources for her mom, and is passing along her knowledge and experience in hopes it will help others! We have started to make some noise online bringing awareness and much needed attention to these rare diseases. Our Goal is to reach and support all those suffering and in need of support across the globe with PSP/MSA/CBD.
There is no known cause, treatment or cure for Atypical Parkinsonism - YET!
Help us change that!