Online Support Groups by CurePSP
Online Support Groups
Many people cannot travel to meet with an in-person support group, or do not want to attend one, but are still looking for the comradery and comfort they provide. CurePSP recognizes this need and sponsors online support groups that allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA, or related brain diseases by using their computer, telephone (charges may be incurred), or both. By using a computer the facilitator is able to share their screen with the attendees, and can share documents, images, and other visual aids. This has proven to be a very helpful feature for the sessions and beneficial for those attending.
TO REGISTER AND USE:
- Click the meeting link for the group that suits you and register for the online program
- At the meeting time, use your computer to go online and follow the meeting link for your group
- Follow the prompts and choose to either listen in with your computer’s microphone and speakers or follow the instructions to dial in with your phone (instructions also included below)
For more information about the meeting you want to participate in, please contact the Facilitator. If you have other questions about support services, please email email@example.com.
PSP/CBD 101: An Educational Support Series for the Newly Diagnosed
Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of PSP, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.
People with PSP/MSA/CBD and their Carepartners
Meeting Times: Third Thursday of each month from 3:00pm-4:30pm EST
Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341
Facilitators: Gregg Felice, LCSW-R firstname.lastname@example.org and Jessica Shurer MSW, LCSW email@example.com
Carepartners of People with PSP/MSA/CBD
Meeting Times: Second Thursday of each month from 3:00pm-4:30pm
Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733
Facilitators: Gregg Felice, LCSW-R firstname.lastname@example.org and Ileen McFarland, email@example.com
(Women Only) Carepartners of People with PSP/MSA/CBD Support Group
Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST
Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819
Facilitators: Nancy Montgomery firstname.lastname@example.org and Janis Appel email@example.com
(Men Only) Carepartners of People with PSP/MSA/CBD Support Group
Meeting Times: First Tuesday of each month from 8:00pm-9:00pm EST (November meeting will be held on November 4th)
Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051
Facilitators: Tom Tait firstname.lastname@example.org and Bill Furlow email@example.com
People with PSP
Carepartners of People with PSP
People with CBD
People with CBD and their Carepartners
People with MSA
Carepartners of People with MSA
Adult Children of People with PSP
Carepartners Dealing with Advanced PSP
Meeting Time: 4th Wednesday of each month from 7:00pm – 8:00pm Eastern
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcia, Phone 973-962-9356, email firstname.lastname@example.org
After The Loss: A Bereavement Support Group for Carepartners
Meeting Times: 3rd Tuesday of each month at 2:00pm Eastern
Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170
Facilitators: Gregg Felice, LCSW email@example.com and Meghan Sweeney, LCSW firstname.lastname@example.org
This group is intended only for those who have lost loved ones to PSP/MSA/CBD or a related disease in the past year.
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CurePSP, Unlocking the Secrets of Brain Disease, and Because Hope Matters are registered trademarks of CurePSP, Inc.