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RARE DISEASE SUPPORTS AND RESOURCES

Great Resources for Information on PSP/CBD/MSA & Rare Diseases!

Tons of great resources and information all in one place! Click the logo to go to their websites! 

PSP Awareness help's support & spread Awareness throughout the communities and in the medical field for Progressive Supranuclear Palsy (PSP) and rare diseases.
                         
CurePSP is the leading source of information and support for prime of life neurodegenerative diseases, including PSP, CBD, MSA, ALS, CTE and FTD.

Parkinson Canada  Since 1965, Parkinson Canada has worked to provide support services and education to people living with Parkinson’s disease including PSP/MSA/CBD, their families, and the health care professionals who treat them.

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.

The Krembil Brain Institute at Toronto Western Hospital (UHN) is home to​ one of the world’s largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine.

PSPA PSPA is a national charity providing support and information to people living with PSP and CBD while funding research into treatments and ultimately a cure.
               
NORD If you live with a rare disease, or love someone who does, NORD is here to help you. For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments.
  
NINDS PSP is one of the diseases being studied as part of the NINDS Parkinson's Disease Biomarkers Program, which aims to discover ways to identify individuals at risk for developing Parkinson's and related disorders, and to track disease progression.

 Mayo Clinic Every year, more than a million people come to Mayo Clinic for care. Our highly specialized experts are deeply experienced in treating rare and complex conditions.